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Overview of the national health registries - NIPH
Map-HD Registry - Huntington's Disease Network of Australia
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JOIN-HD – The global registry for Juvenile onset Huntington's Disease
Enroll-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort – CODA Research
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Exome sequencing of individuals with Huntington's disease implicates FAN1 nuclease activity in slowing CAG expansion and disease onset | Nature Neuroscience
REGISTRY Study Protocol REGISTRY – an observational study of the European Huntington-Disease Network (EHDN)
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A patient-powered registry boosts the study of a rare disease | Penn Today
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International Pachyonychia Congenita Research Registry (IPCRR)
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